Published: by Patrick Remy |
permalink At the Primary Ciliary Dyskinesia (PCD) Foundation, our mission is to improve the quality of life of patients with PCD and to develop the means to find a cure.
Tags: Kartagener syndrome, immotile cilia syndrome, ciliary aplasia, ciliopathy, ciliopathies, Situs inversus, chronic cough, wheezing, excess mucus, wet lung, junky lungs, transient tapychnea of the newborn, neonatal respiratory distress, ear infection, hearing loss, tube surgery, bronchiectasis, frequent pneumonia, negative cystic fibrosis (or CF) test, heterotaxy, dextrocardia, sinus disease, sinus infection, impacted sinuses, congenital heart defects, pectus deformities, polysplenia, asplenia, cilia biopsy, supplemental oxygen for newborn, hydrocephalus, ventriculomegaly, retinitis pigmentosa, rod-cone dystrophy, low nasal nitric oxide, bronchiolitis, Pseudomonas, aspiration pneumonia, electron microscopy